Saturday, 8 October 2016

Red Carpets to Reports

Before I go into the perhaps not so glamorous details of my time as a now fully-fledged college student,  I thought I'd take you back to the beginning of September for a touch of sparkle.

The Creme de la Creme Ball, hosted by Reality TV stars Dawn and Ashley Ward (check out Real Housewives of Cheshire if you haven't already - I promise you'll thank me), takes place annually in the most glamorous marquee and plays host to a whole range of huge names, from the stars of Hollyoaks to this year's Love Islanders themselves. Dawn and Ashley are great supporters of the charity Caudwell Children, and so hold the Crème de la Crème in the grounds of their stunning Cheshire home to raise funds for a cause close to their hearts.

After deciding on an appropriate outfit for the dazzling evening and styling my hair to perfection (creds to PA Sally), we hopped into our trusty Fiat Doblo and joined the queue of Ferraris to enter the breathtaking grounds where the ball was to be held. It's such an honour to be invited to an event such as this, and that surreal feel of being surround by such stars never quite sinks in.

I'm not really down with red carpet protocol, I mean, do you look straight at the camera? Do you look casually into the distance? I just don't know. Anyway, we made it to the champagne reception and drank in the fabulousness of it all. I honestly don't know what I'd do in this kind of situation if my chair didn't rise up to standing height. Apart from not particularly enjoying being bent down to like a three-year-old, it can be quite overwhelming having hundreds of very tall people in stilettos  towering over you. Also, how would I reach the bar?

Just to add to the whole craziness of the evening, we were seated at a table with the stars of Hollyoaks! The food was exquisite, but just as I was about to tuck into my chicken (I think?) main course, I was whisked away to the stage to make my speech.

This by no means was the first speech I'd ever made, but this time felt different. For the first time, I felt I was truly speaking as the person I wanted to be with a confidence I had not experienced before. When I speak about my powered wheelchair, some may say that my words are exaggerated and that a piece of equipment can't honestly mean that much - it's no joke when I say the chair is a part of me. When it isn't just right, it comes with that same crushing feeling of leaving the hairdresser's with a dodgy haircut or leaving the salon with a wonky set of waxed brows. My chair is not only about practicality and functionality, it's about feeling exactly how I want to feel.

And here it is in action....

I'm afraid Cinderella's night of sparkle was just that - a night - and so it wasn't long before my Pumpkin carriage pulled up at the gates of my real life, The City of Stoke-on-Trent Sixth Form College. As I wrote in my previous blog, college is an entirely new experience for me, and my take on it is perhaps different from the person's next to me. Then again, I guess everyone has their own unique take on life.

My average college day begins at the ungodly hour of 4:45am when I begin my respiratory workout. This involves a nebuliser to clear my airways and then a Hayek Oscillator (or as I like to call it, the 'Shaker Maker') to literally shake out any secretions. I then proceed with what I assume to be a pretty typical morning routine of any sixteen-year-old - showering, choosing an outfit, makeup, hair etc., the only real difference being that I have a PA to assist me, making me an actual, real-life Disney princess (no joke).

Once I arrive at college, the rest is up to me. No longer am I escorted from lesson to lesson or even watched from a few feet away - and I love it. Although it can be pretty terrifying at times, I finally feel as though I can introduce myself as simply me as opposed to me-plus-one. Of course I've had some awkward and embarrassing moments (like accidently pressing my horn during a lesson) and of course I've found myself in some rather sticky situations (like my head dropping on exiting the lift), but surely this is just part of college life, albeit with a slight twist? I have to be given the opportunity to make mistakes and get lost along the way as, if I spend my entire educational life being protected from such things, how am I expected to cope when these inevitabilities eventually occur when I enter the real world? It's all been a gradual process, and now I'm just beginning to reach where I want to be.

Couldn't resist sharing this pic of my insta-worthy college 
things with you

Finding the confidence to ask for assistance from those around me has probably been my biggest step. I'm not asking anyone to administer intensive respiratory care or anything, but it's more the simple things like grabbing my homework out of my bag or opening my pencil case. Once people get used to my situation, I've come to realise that they honestly don't mind giving me a hand.

But if I thought I'd made a big step in going to Sixth Form College, how about my big sis heading off to Cambridge University! Last weekend, she packed up her things and made the giant leap into uni life where I'm sure she will thrive. So far she has managed to survive freshers week and is now just beginning to get her head around the beginnings of her degree in Modern and Medieval Languages (French and German).

It's a strange feeling for me as we literally do everything together, and for the next eight weeks or so, I've lost my partner in crime. She's now living her Hogwarts dream, and I honestly couldn't be happier for her - now I'm just looking forward to the epic Cambridge parties when I visit! Hearing about her student adventures so far is also making me all the more excited for when my turn comes...

That's all for now as a great mound of homework - or as they now like to call it, 'independent learning' - awaits, but I'm sure I'll be back shortly to give you the next installment from where I sit.

Write soon,

Tilly,xoxox

Twitter/Insta: @ItsMeTillyG


Sunday, 11 September 2016

The Summer of All Summers

As I sit with my pink false nails tapping away on the keys and my cheeks aching from the awkward smiles I give to the strange faces that pass by, my only comfort is that I know we are all wondering the same thing - how have we landed ourselves in this bizarre and terrifying place called Sixth Form College? My mind can't help but wander back to the days of Piña Coladas in Punta Cana and the crashing waves of the Californian coast, but for the next two years, this is my new reality.

I could dwell on the fact I haven't written my blog for OVER A YEAR, but personally, I prefer to focus on the now and the tomorrow. Having said this, it's only fair that I give you a little recap of my summer, right?

And what a summer it's been! I wouldn't exactly describe beginning it with a dreaded vertigo attack as a high point, but once that was out the way, I was ready and raring to go.

If you are (were) an avid reader of my blog - which I'm sure all of you are - you may remember our previous trip to the white sands and turquoise waters of the Dominican Republic. This place is just it. Anything you could wish for on a Caribbean holiday, it has. There's a part of me that feels I should just leave this out of my blog, as I honestly don't believe the words exist to describe our experience and do it justice, so as a complete cop out, here is a photographic summary of our time in paradise....


It's the people that truly put the paradise into Punta Cana....

As the tears of longing and holiday blues continued to fall, the only feasible solution to this problem that I could come up with was to go and dry them out with a bit of Californian sunshine - sound like a plan?

I'm pretty sure I may have mentioned once or twice about the fact that I'm planning to study in the US as of 2018? Well, this dream is now yet another step closer to becoming a reality.

Our LA adventure began at Heathrow Airport, where we went through the usual escapade to get both me and my electric chair on board that plane. Having flown to and from the Dominican Republic just one month previously, we were a little more confident in what we were doing, but with my Dad (master of all things chair-related) staying home this time, my Mum, my PA Sally and I had to put on our brave faces and muddle through alone.  Thankfully, all went smoothly, and I was greeted in the LAX baggage hall by a familiar flash of silver tiger stripe (or zebra stripe - still not quite decided).

If this thing gets damaged, the entire holiday 
is OVER..... no pressure

We spent our first day on LA soil doing everything a typical tourist could ever dream of. We booked wheelchair accessible tours of Hollywood and Beverly Hills; we had a house-by-house guide around the celeb homes; then we donned our posh frocks and stopped for a bite to eat at The Beverly Hills Hotel no less! This was a great way to experience the buzz of the city and get a real feel of the LA that is known and loved.

My very own rollercoaster.... 

The legend Michael Jackson

Arriving in style!

Now, I wasn't going to say no to a photo with these guys, was I?

The following day, we simply couldn't resist - Disney was calling out to us. I am lucky enough to have travelled to both Paris and Florida in search of Mickey and Minnie,  but for Sally, this was her first encounter with the magic. I personally fell out with rollercoasters a long time ago, partly due to my vertigo and spinal rods, but also simply because I can't think of a worse way to spend my time than aboard one of those monstrous machines. I just love the atmosphere and electricity that is guaranteed at all Disney Parks - I could quite happily sit  and soak up the rays and vibes as Sally hopped from ride to ride.

Living my princess dream

And then the hard work started. From Monday to Friday, we visited a handful of different universities, stretching from Malibu to Downtown LA to Orange County. Over the course of the week, it became more and more apparent that LA itself was really where I wanted to be. From an access point of view, being at the centre of the action means great transport links and everything you need literally at your fingertips, but it was more than that. In order to get internships in my field of interest, for me this being the music industry, I really need to be where it's all happening.

Go Bruins!

From speaking to both students and the disability officer at these campuses, it was clear that this is the place for me. The facilities for accessibility are next to none, and the positive, easy-going attitude shown by all towards me is not something you come by every day.

The LA lifestyle was made for me. The climate would mean that my hand wouldn't freeze and stop me driving every time we leave the house; the significant lack of cobbles would mean that I could walk (or for those of you with a picky bone, drive) for miles at a time without having my head wobbled off; and the laid-back, yet vibrant Californian people can't help but put a smile on your face.

Excuse the following photo shoot - just couldn't resist....



Malibu moment!

Pacific Coast Highway 

Marking the rare occasion of me being ON THE BEACH

Rodeo Drive babaaayyyy

If anyone fancies sending me anything, my new postcode
is 90210.... for real


Casually bumped into Team GB whilst waiting for my 
chair in baggage reclaim!

After such an unbelievable 10 days, what better way to bump back down to Earth than to swoop straight into GCSE results day! While we were away, we received a call from my absolute genius of a sister, informing us that she had received 3 A*s in her A-Levels and was heading to Cambridge! So you can imagine, no pressure eh?! Luckily, my 9 A*s and 2 As didn't disappoint my parents too much, and so they've agreed to keep me on for a little while longer. On a serious note, these results are so important to me as they unlock the door to the next step in turning my LA university dream into a reality.

So what to do with the last weekend of summer? How about a festival to go out with a bang? Fusion Festival is alway an incredible weekend, and this year was no exception. This is another one of those situations where photos probably say it better than words for now, so here you go.....

Photo shoot continued....

Still very much a fangirl at heart

Just in case the photo doesn't make it clear, we were loving the 
VIP life

There goes that inner fangirl again....


REAL talent


Ollie never fails to make me smile

Starting college alone this week was probably one of the scariest experiences of my life, but I'm certain it was the right decision. Sat here now, despite the awkwardness and complete unknown, I can feel a vibrancy and excitement in the air, and the opportunities on offer here are sure to provide a springboard to my next chapter.

It feels great to be back writing, and hopefully, I'll now be able to more regularly update you as I navigate my way through my slightly alternative teenage years and continue to fly beyond my dreams - all the while wearing killer heels.

Write soon,

Tilly xoxox

P.S. Please don't hesitate to contact me with any questions at all, either on here or using my other social media accounts -

Twitter/Insta: @ItsMeTillyG